Updates

So I don't want to completely give up blogging but just can't find the time to do it! I wanted to post quickly about what's going on at our house and put up a family picture. One of the biggest decisions we are being faced with is where to accept a job. Jordan is done with his MBA at BYU in April 2012 and had received an offer from Savage Services, who he did his summer internship with. It would be in Auburn, Maine! Crazy.....NEVER thought I would live there. Jordan loves it there and the job would be a good fit. He has also interviewed with Johnson & Johnson, Mars (who he has a fly back interview for in Nov.), Chrysler, New York Life, and who knows what else he will drum up. We are supposed to hear back from all of these companies in the next few weeks. He is doing such a good job and I am SO proud of him. All his time away from us is really going to pay off in the long run. We'll know by Christmas where we'll be moving next Spring! I can't wait to know so I can start planning :)
I have been a busy mommy of two healthy, beautiful boys. Often I feel VERY overwhelmed that I can't handle the job and need more breaks but so often I feel overwhelmingly grateful for my blessings and that I can be a mom at all. Both pregnancies were so scary and knowing that I can't have anymore babies (too risky), I just have to remind myself to enjoy these moments because they pass so quickly. Who needs sleep and alone time right?
I don't have anything more exciting to say but we are doing so good and looking forward to our future!

Home Sweet Home

I got to come home from the hospital on Monday, and it was one of the best days of my life. To sit on my own couch, sleep in my own bed next to my husband, and especially to be home with my sweet Abram was such a joy. As I put him to bed that night, I cried like a baby because I was so happy to put him to sleep. It had been 3 1/2 weeks since I kissed him goodnight......pure bliss in my eyes. I am still enjoying the regular things in life, like MY shower and not having to try and cover huge lines coming out of my body with plastic and tape before I get in. And people not waking me up every 5 minutes for vital signs or pills. And taking care of my almost one month old little Jeremiah with Daddy by my side. It's been wonderful and things are starting to get more normal. My Dad left today for home, he will surely be missed. He has been cooking for us all week and playing with Abram like there's no tomorrow. Abram loves his Grandpa Hutzley. My mom-in-law is here until Tuesday and has been so great to have around, we'll see how things go after she leaves. My own sweet mother left the day before I left for home, she stayed in the hospital with me for 3 weeks!

I have one more dose of Rituxan, the drug that has been killing my new generation B-cell antibodies that were responsible for this whole mess, this coming Tuesday at the Huntsman Cancer Hospital. After that we're just going to have to do some lab work checkups for a while and I'll continue to taper off my prednisone......the death of me irritable, funny feeling, and that has made my face a balloon :o)

I am so blessed. Thank you all for all the prayers and fasting on me and my family's behalf, it works and I felt it and I am so grateful. We had lots of wonderful experiences through this trial.

Now for the fun part, a few photos of my prized little boys.........it's been so fun to have a newborn in the house. Jeremiah is such a light in our lives.

Thanks to the Hill's we have matching PJs for the boys..they are SOO cute! Thanks Marta :o) I haven't been able to get out and do any shopping. The perfect gift!


This is us heading home from the hospital, check out the sweet view of SLC I had. (kinda not so clear this day) It was the best room in the Huntsman and I was spoiled because I had a newborn baby and my mom staying with me.


Just snoozing, what I do best. And lookin' so snuggly!


Okay Abram multi-tasking......enough said. I was laughing so hard!



Hopefully I can keep my act together and more stuff will be coming.....we'll see what sleep deprivation brings. Love you all! It's so good to be home.

Update

*Amy hacking in again to bring you an update...

So things haven't been going as well as hoped for. Heather's spleenectomy didn't fix her TTP. She has been moved to The Huntsman Cancer Hospital for more treatment. She continues to have pheresis daily and has started some new medication as well as a chemotherapy drug called Retuxan. Her platelet counts are slowly rising, but not high enough for her to go home on outpatient treatment.

On the up side- the new hospital has made accomodations for grandma and baby Jeremiah to be there too. So Heather is able to have him around to keep her mind off things. She still misses Abram, and Jordan is able to visit when not at class. Abram has made a few visits with grandpa too.

Jerermiah turned two weeks old yesterday. Here are a few more pictures of the cutie and his family:
Abram with baby Jeremiah.



The first family photo.




Heather with her sweetie.
Jeremiah 12 days old.

Jeremiah Blake

*Report brought to you by Amy, Heather's sister. Just to keep all of her friends informed about what is happening.

Jeremiah Blake Wilson
Born January 10, 2011 at 2:54pm
Weighed 8 lbs. 4 oz.
Length 21 inches

The story- shortened version-
Heather was hospitalized on January 6 at 36 weeks pregnant from complications with TTP. She had TTP when Abram was born. So this was a possibility, but still unexpected as things had been going smoothly up to this point. She was given plasmapheresis in hopes that it would elevate her platelet count. After several days of pheresis her counts were not improving as they should have. The doctors decided to deliver the baby by C-section 3 weeks premature to hopefully get Heather better. (After Abram was born Heather was able to recover fully from the TTP on her own.) Five days after the delivery of Jeremiah Heather's platelet counts were still not improving, even with treatment. Her red blood cell count was also low. Doctors decided that they needed to remove Heather's spleen. Last night they did that. It was a scary situation, but Heather pulled through the surgery. Today her counts are being monitored every six hours and have been slowly rising all day. She is still facing the possibility of a few other treatments and is still in the hospital.

Baby Jeremiah is home with big brother Abram and his Grandma. He is healthy, doing well, and very cute as expected.

Heather would appreciate any emails to cheer her up. It is not always possible for her to answer her phone, but you could leave her a voice mail or send her a text to let her know that you are thinking of her. As you can imagine, it is really hard on her to be separated from her children and especially her new baby.

I will try and update her blog on her condition as things progress. We are hoping to have her home and her sweet baby Jeremiah in her arms as soon as possible.